Coronavirus Has Become The Great Equalizer For The Mentally Ill

For years now, I have attempted to combat the stigma associated with mental illness.  Again and again, I have given real world examples, approached the subject from differing angles, even used charts and graphs, hoping to help those who have never experienced it themselves better understand.  Yet, sadly I still often feel like I fall short.  While those who are living with mental illness have contacted me numerous times to thank me for putting their experiences into words, there are still those who could not wrap their minds around what it was like to live with our diagnosis.

That is, they couldn’t fully understand until this pandemic hit.

Day after day, for months now, I continue to see postings, comments and tweets that could have been written by any one of the millions of people who struggle every day with various mental illnesses.

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People talk about being worried all the time, sometimes not even knowing what it is that they are worried about, only that the ever-present feeling of dread is looming there, hanging over them.

People talk about being afraid of their world falling apart, the economy crumbling, their job not being there after all of this is over.  They worry about not being smart enough to home school their kids, and of the dangers of sending them back to school in the height of the pandemic. They worry about the house not being clean enough if they have to do a video conference with their co-workers or whether they are even capable to adequately work from home for any length of time. They worry about bills accumulating faster than money comes in and the continuous threat of losing their homes due to evictions and foreclosures.

Even seemingly little things like running to the store for food or toilet paper feel huge.  The world outside doesn’t feel safe.  What if the store is out of whatever we need when they get there?  What if they bump into someone sick? What if they bring the virus home?  The sound of someone nearby coughing makes them jump and want to run back home to safety.  Many even put off going out for days until they absolutely have to, the dreaded eventual trip weighing on them.

People talk about being worried incessantly and excessively about their loved ones and friends, of imagining worst case scenarios of their illnesses and deaths, even though they know they are currently safe and healthy.

Though the common sense part of their brain keeps firing off, trying to remind them that everything is currently okay, and that things will likely eventually be okay again, they cannot help but feel like everything they are worried about is not only possible but probable.  Everything seems to be hanging heavily and even little things feel too big to handle some days.

They feel restless. Their mind runs nonstop.  Even reading the news feels overwhelming, yet they struggle to look away because they feel an urgency to stay informed.  They feel like they have no control over their lives, as if everything is spiraling down into chaos, getting crazier by the day, and there’s absolutely nothing they can do to stop it.

They talk about the confusion of differing information out there, of never knowing what to believe, who to trust, and being fearful of choosing incorrectly and it leading to disaster.

People talk about being continuously exhausted as the pandemic drags on and on, about wishing things would just be over but fearing there is no end in sight. They’re tired of thinking about the coronavirus, tired of worrying about it, want it to just go away. Yet it continues to loom, to linger, to threaten their peace of mind and their very sanity.

All of that is anxiety.

THAT is what people who live with an anxiety disorder go through every single day over a multitude of things in our lives.

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People talk about that feeling of hopelessness.

They feel trapped at home without any real purpose. They are constantly dragging throughout the day.  They can’t stay focused. They are eating and sleeping all the time or not at all.  Some complain about not even enjoying their favorite foods anymore or their favorite shows no longer bringing them any joy.

Some feel all alone.  Many of those feel isolated even with others around, afraid to talk about what they are feeling and going through because they don’t want to seem crazy.  They pull inwards, trying to cope and to put on a brave face, even though they feel like they are falling to pieces inside.

Homeschooling has become overwhelming – they don’t remember school being that hard and feel inadequate because they are struggling to help their kids with basic subjects.  They feel they are letting everyone down by not being enough. Yet the thought of sending kids back to school feels equally as disastrous. It is as if no matter what choice they make, it’ll be wrong, that every option is equally bad and hopeless.

Life itself feels exhausting to them.  There’s times they just feel numb to it all.  Other times, they just want to cry.  Often, they just resort to sleeping, or mindlessly scrolling through social media or watching random shows, though they can barely recall afterwards what it was that they saw.  They feel they are just going through the motions and desperately wish life would just get back to normal – though they know there is nothing they could do to change anything.

Some people are attempting to regain control of their lives, to go out and do something, anything, to reclaim the life they once knew. Yet, while out and about, they are distracted by all that could go wrong, by wanting to return to the safety of their homes. Though part of them desperately wants to enjoy their time out, their thoughts and feelings hang heavy on them, throwing a dark cloud over it all. They feel guilty for everything – for even trying to go out, for trying to have fun, for being too lax or not taking enough precautions. They apologize to others for sucking all the fun out of what could have potentially been a nice day, feeling they somehow seem to be ruining everything they touch.

They see other people being productive, using their downtime wisely to accomplish so many things. They wish they could get things done, as well, but seem to have no desire, no drive to do anything. They find themselves procrastinating and then beating themselves up for their inactivity, which in turn makes themselves procrastinate more, caught in an endless loop where nothing gets done and then they beat themselves up for that lack of productivity.

All of that is depression.

That is what people struggling with a depression diagnosis go through on a regular basis.

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I have seen people talk about wanting to be productive during this downtime, taking on a multitude of projects, more than any one person could legitimately handle, convinced they have the time and energy to do it all, only to crash into an overwhelmed, discouraged heap days later with everything half completed.  They go through cycles of manic, larger than life aspirations and heavy, depressing reality.

People talk about feeling irrationally angry, of feeling fed up about everything and nothing in particular at the same time. They find themselves continuously annoyed with everyone in their life and even the pandemic as a whole.

They describe many of the feelings common with depression, but with an entirely different mess added to the mix. They talk about having feelings that boomerang and yo-yo from one end to another, or sometimes both extremes at once. They talk about feeling so much, in so many directions, that they cannot even put it all into words.

Those highs, lows and extremes are all aspects of bipolar disorder.

People struggling with bipolar disorder often find themselves experiencing a wide variety of emotions and extremes with no rhyme, reason, pattern or predictable duration.

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The list goes on and on of ways this pandemic has helped mirror mental illness in the everyday lives of people who have never experienced it before and struggled to understand it. In the last few months, I have seen these sentiments appear and reappear throughout the country as pockets of positive cases sprung up and the epicenters continued to shift. No matter where the worst of the pandemic currently resides in the country, though, the narrative has remained largely the same.

Whenever I see people talking about their struggles during this pandemic, I want to call out “YES! Yes to this tenfold! That is exactly what it is like!” in hopes of turning it into a teachable moment.

At the same time, I find myself saddened, because I wouldn’t wish any of these experiences on anyone else, even if they are temporary and likely to end when this crisis is over.  I know what it is like to live with anxiety and depression every single day for years on end. I grew up seeing my mother struggle with bipolar disorder and now watch my fiance battle it on a daily basis. I am intimately familiar with many of the struggles of living with a mental illness. It breaks my heart to see so many others going through these struggles because I know firsthand how hard it can be.

As strange as it sounds, though, beneath it all, this pandemic has given me a strange sense of unnerving calm. For the first time in my life, I don’t feel entirely odd, different, unbalanced or crazy.  For the first time, I don’t feel singled out, the odd woman out in a world where everyone else seems to be breezing through life, coping much better than I could ever dream. For the first time, everyone else can finally understand all the feelings I go through every single day.  At least in that one aspect, the pandemic has become the great equalizer for those of us with mental illness.

I can only hope that their memories do not fade, though, once all of this is over.  Perhaps now that more people understand and have experienced many of the feelings commonly associated with mental illness even on a temporary basis, they will be more empathetic to the struggles many of us face every single day. Though even if those memories do eventually fade away, I hope everyone currently struggling to cope with the weight of the pandemic knows, as those of us in the mental health community often reassure each other, that none of you are alone. Though there are no easy answers or solutions to much of what you are feeling, we understand and we are all here, even if physically apart, to offer our support. Please never be afraid to seek help if you find you cannot cope on your own. Stay strong.

Art Therapy For Depression

I made some paper mache pumpkins today.  It wasn’t that I was feeling particularly cheerful or festive.  It is that creating art helps me cope with my depression.  Art has become one of my favorite and most used self-care techniques in my mental wellness toolbox.

When I am struggling under the weight of my own emotions, I often write about the impact my illness has on my life.  When I am feeling numb, I prefer crafts that are multi-dimensional and messy, so I can feel with my hands even if I cannot feel with my heart.  When my life feels dark and hopeless, I use bright colors.  When I feel lost and alone, I create with warm hues, hoping to dd warmth into my life.  No matter how my depression distorts my perceptions, there is a way to combat it with art.

Some people assume that if I am well enough to create art, I must not be struggling too badly.  Honestly, the opposite is true.  I have found that I create the most, and the projects with the deepest personal meanings, when I am struggling the worst.  I use artistic expression as my lifeline back to reality.  It is the life preserver that keeps me from drowning in even the roughest of storms.

When someone is struggling with depression, the world feels dark and bleak, devoid of any glimmer of light, hope or goodness.  There is no beauty in depression.  So it helps me to create something beautiful out of my despair.  In my artwork, I am reminded that there is more to the world than darkness.

When someone is suffering from depression, the feelings can be overwhelming.  You are often raw and feel everything too deeply.  You feel like you are drowning in pain and anguish.  It helps creating something that will express what I am feeling inside, to release some of the agony that is consuming me.  As a wise Ogre once said, “Better out than in”.

When someone has been diagnosed with depression, it seeps into every corner of their consciousness.  It is exhausting and overwhelming.  It often feels like there is no escape from the prison of your own mind.  It helps to create something that can distract me from everything going on within myself.  When the creative juices are flowing, it is easy to forget for even a little while the weight of this illness on my shoulders.

When someone suffers from depression, they often feel they have no control over anything in their lives anymore.  You often feel like you are on a runaway train, with no way to slow down, stop or get off.  You are held hostage, just along for the ride.  It helps me to create something artistic because it gives me back some control.  My artwork is in my hands.  I choose what to make and which direction to take it.

When someone is struggling with depression, they often feel useless, like an utter waste of space.  Depression distorts reality and destroys self-esteem.  You feel as if you can do nothing right and that everything you touch will become damaged, tainted and tarnished by your very presence.  It helps me to create things because art is about expression, not perfection.  There is no right or wrong so even when I am feeling like a complete failure, I cannot mess up my art.

When someone who has depression feels isolated and misunderstood, it is common to feel all alone in the world.  It can feel like no one is there, nobody cares, no one could possibly understand what you are going through.  It helps me to create things I can show others, share with them, to create something to bring them back into my circle, back into my life.  Art brings people together.  It starts a dialogue where otherwise there would be silence.

There are times when someone who is suffering from depression is at a loss for words to explain how they are feeling.  You might not even be sure what you are depressed about, only that those feelings are there.  It helps to create things not only so that I can work through and understand my own feelings, but so that I can help explain it to others, as well.  Art doesn’t have to be neat and easily explained.  Art can be a messy, jumbled mess and still get its point across.

There are many reasons I create, a multitude of reasons why art comforts my mind and soothes my soul.  Using art to combat depression isn’t about clear and concise thoughts, raw talent or creating masterpieces.  It is about letting emotions out, replacing the darkness with some light and adding your own brand of beauty and creativity into the world.  Art is a wonderful tool for mindfulness because it brings you back into the moment, back to reality to focus on the here and now.

When the world feels broken and hopeless and you feel lost and alone, it might feel impossible to find the motivation to create.  Use your illness as inspiration.  Put into your words or on your canvas how you are feeling inside.  Share everything you wish others knew.  It doesn’t have to be perfect, or even coherent and understandable to anyone but you.  It can be raw and painful, mirroring how you feel inside.  If you have the urge to express how you are feeling through your artwork, don’t hold yourself back.  Art is about letting your feelings flow.

You don’t have to create based on the negativity of your depression, either, because you are so much more than your depression.  The beauty of art if that you are only restricted by your own imagination.  The world around you is full of inspiration.  Look to the future for upcoming holidays and events.  Look to the past for cherished memories.  Take inspiration from friends and family or beloved pets.  Open a window into the nature outside or look to the heavens above.  Revisit your favorite book, movie or television show.  Pick a color that calls to you or an abstract thought and run with it.  Find your inspiration in something beautiful, something that reminds you of light, happiness and hope.

You don’t need to overthink art.  Don’t question things.  There is no right or wrong.  Just go with the flow.  Focus on the here and now and the creative process.  Put yourself into your art, the person you are at this very moment or the person you wish you could be.  Art is also about possibilities.  You start with a blank canvas or empty page.  As you create, open yourself up not only to everything your art can become but everything you can become, as well.  Remind yourself that you are more than your diagnosis.  You are many things, many pieces that are not as dark, bleak and hopeless as your depression makes you feel.  You are an artist!

I created some paper mache pumpkins today.  Those pumpkins might not seem like much, but they helped me get through another rough day.  Though it by no means cured my depression, it gave me a much-needed reprieve from my struggles and a way to add some beauty to a world that would otherwise feel dark and bleak.  Art might not be a panacea, but it is a useful crutch that can help get you through the hardest of times, making you feel stronger at a time when you otherwise might not be able to stand on your own.

The Depression Chart – Helping Others Understand Depression

*Ever since I created my Anxiety Chart, I have been asked by readers to create a similar chart for depression.  After much thought and consideration, this is the chart and accompanying graph that I designed.

Many people do not understand depression, assuming it is just random bouts of sadness and crying.  Unless someone has suffered through their own struggle with depression, it is near-impossible for them to truly understand how debilitating it can be to live with that diagnosis.

One of the hardest parts of explaining depression is that it is neither rational nor is it predictable.  It is hard to provide relatable examples because the feelings connected with depression would feel wildly irrational to anyone not experiencing them at that moment.  It is also impossible to predict or predetermine depression because it often comes unexpectedly in waves.

Therefore, instead of providing a chart with relatable examples, the chart I devised shows the increasing intensity of this mental illness.  My hope is that the statements provided at each level, combined with the descriptions included, will help those who have never struggled with depression understand how our frame of mind is magnified as our condition worsens.

It is also important to note that depression is not all sadness and hopelessness.  Instead of providing a chart listing levels 1-9, I have split this chart in half.  There is a 1-4N to designate worsening stages of numbness and a 1-4D to describe stages of downward spiral.  This chart is extremely simplified, yet illustrates how, as depression worsens, the intensity of the condition increases.  However, unlike conditions like anxiety that worsen in one direction, depression can and does frequently occur in both the realms of numbness and hopelessness to varying extents.

It is also important to note that depression is not linear.  It comes in waves and spikes.  It is not uncommon to struggle with days of increasing numbness, only to wake up the following day in the midst of a downward spiral.  Depression randomly alternates between the two, with no rhyme or reason to the length or intensity on any given day.  Some days you feel nothing at all, other days you feel everything too strongly.  There’s no way to predict when you will be pulled in either direction or how long either will last.

There will be days when someone might even feel fine, or even just more functional.  On other days, you might be unable to pull yourself out of bed or might seem to cry over everything.  There are days that feel like a struggle and others that feel completely impossible, days where you find yourself crying a little bit more and days you just want to give up.

When describing increased emotional pain, the best example I can think of is to compare it to the pain of loss.  Milder stages of depression might be akin to losing something that matters to you, perhaps something of sentimental value.  As depression increases, imagine the pain of losing a beloved pet, your parents, your spouse or your child.  Imagine the ache and the pain, the feeling in that moment of things never being okay again, of wanting to give up, to crumble under the weight of that pain.

Except the person you are mourning is yourself.  Your happiness and who you used to be.  And the loss comes again and again in waves, sometimes mild, other times so severe that the tears and the pain feel like they will never stop.

At the same time, you loathe and disgust yourself.  You feel worthless, a waste of space.  Your own mind lies to you, convincing you that the world would be better off without you in it.  That is where rationality parts ways.  Everyone can understand loss, pain and grieving.  But it is hard to wrap your head around losing yourself, let alone hating yourself, unless you have spiraled down to those depths yourself.

Yet those feelings are there, along with a tremendous amount of guilt.  You feel guilty that you are such a mess.  You feel guilty for subjecting everyone else to your mess, as well.  Often, you are also ashamed of your illness because you feel you should be stronger, more capable, better than you are.  That shame often leads you to lie or minimize the intensity of your suffering for fear of being judged.  Depression makes you feel like a failure just for being sick.

When someone is struggling with depression, their very perceptions become distorted.  It is common for everything to feel much worse than it actually is.  Think back to when you were a little child.  Things on the counter felt up way too high, the door knob out of reach.  Even simple things like tying your shoes were a struggle and felt like a monumental task that took maximum effort and concentration.  That is how everyday tasks feel when you have depression.  Everything feels harder.  Every problem feels bigger.  You feel small and helpless.

Think back, too, to when you were a young child and were upset with your parents, when you felt completely misunderstood and all alone in the world.  Think back on the time when your four or five year old self was convinced you should run away, that nobody would care if you were gone. Think back to any other point in your life, as well, when you felt completely alone, when you had no help, nobody there.  With depression, those feelings are ever-present.  Your mind tells you that nobody understands, that you are alone in the world.  Depression isolates you by telling lies that you do not matter.

Think back to the last time you were sick, laid up in bed with a bad flu or stomach bug.  Remember how physically and mentally exhausting it felt to even move or pull yourself out of bed?  How easily you found yourself worn out, just wanting to lay back down and sleep?  How you put off going to the bathroom for hours because you didn’t even want to move?  How you ate frozen waffles or canned soup for three days because you just did not have the energy or the desire to cook a real meal?  That is what depression is like, too.

The numbness, however, is hard to explain to anyone who has not experienced it firsthand.  If you’ve ever had someone or something upset you so much that you no longer cared, magnify that lack of concern tenfold.  It is similar to that catatonic shock following an accident or trauma.  You feel nothing, lost, blank, numb.  Eventually, you mentally shut down.  You are immobile, held hostage, trapped in your own mind.  You have no interest or motivation to do anything.  You see no point in even trying.

I wish there were more relatable examples I could give but it is impossible to rationalize the irrational.  There are some examples that are somewhat similar in one way or another, but even those don’t quite equate.  The best I can do is to illustrate the directions depression can go and to quantify how bad it can get.

When trying to explain depression, the best someone who is struggling can do is to explain how close we are at the given moment to either shutting down or wanting to give up.  The worst part is that the status can change in a moment’s notice on any given day.  There is no way to predict when it will veer off in either direction, let alone the severity of the bout.  You cannot even predict what will cause your condition to worsen, or whether it will even be something large or small.  Something as tragic as a great loss is just as likely to cause a period of numbness as a simple broken plate is to cause a severe downward spiral.  There are times we are honestly not even sure why we are feeling the way we do, only that the depression is there.  There is no rhyme, reason or rationality to any of it.

It is not something that a person can control in any way, either, let alone simply snap out of on their own accord.  Depression is a mental illness.  It is a medically-diagnosed condition that severely affects the ability to cope with life, negatively impacting and impairing both thoughts and behaviors.  Having a mental illness is no different than having any other type of illness.  Much like a diabetic has a pancreas that is malfunctioning, when a person has a mental illness, their brain is not working correctly.  The only difference is the organ affected.  Both conditions need medical treatment.

I understand how difficult it must be for someone who has never suffered from depression themselves to understand. Depression seems irrational because it is.  It doesn’t make sense, even to those of us struggling with it every day.  We find ourselves on a roller coaster ride that is speeding out of control, flying up and down every which way, with no way to stop or slow down.  Nobody asks for a mental illness.  Depression is not something anyone has done to themselves or is causing because they are not trying hard enough.  We don’t understand how we even ended up on this ride, let alone how to get off.  How can we adequately explain something we don’t even understand ourselves?

The confusion surrounding depression is also in part due to the stigma attached to mental illness in general.  For years, anyone with a mental illness was labeled as lazy, crazy, dangerous or a joke.  Either way, they were not taken seriously.  Mental illness was a dirty word that wasn’t discussed openly.  People fear or mock what they don’t understand.  The lack of education about medical conditions like depression led to wide-spread ignorance and misinformation.  Unfortunately, once that cat is out of the bag, the damage is done and it will take much longer to properly educate people about mental illness than it took to originally spread the falsehoods and misconceptions.

I understand fully that depression makes no sense to someone who has never experienced it themselves.  It honestly makes no sense to us, either.  But please know that depression is much more than just merely feeling sad from time to time.  With depression, you sometimes feel everything so strongly that it is completely overwhelming, the emotions feel agonizingly painful and never-ending, and the world feels utterly hopeless.  Other times, someone with depression is completely numb, feeling absolutely nothing at all.  Either way, everything feels much harder, more intense.  Depression is exhausting, both physically and mentally.  Perhaps worst of all, you feel helpless to do anything, like you have no control over your own mind.  And depression is not linear.  It goes up and down, every which way, changing direction and intensity on the drop of a dime.

I wish I could provide a chart that was more relatable for those who have never experienced depression, but, as I have stated before, there really is no way to rationalize the irrational.  The best I can do is to lay out what depression is like in a very simplified form and hope for your empathy, compassion, understanding and patience.

Republished on The Mighty on 2/18/19.

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Please Give Mental Illness The Same Respect You Would Give Other Illnesses

Not everyone understands what it is like living with a mental illness. I get that. Most people, at their core, mean well and are trying to help in one way or another.  Whether they are attempting to be supportive or trying to snap someone back into their perceived “reality”, they just don’t know what to say.  I understand that completely, too. But using tired old cliches about life that don’t apply to living with a serious illness does not help at all.  Nor does it help to offer outdated advice that has been proven to be both ignorant and ineffective.  They do much more harm than good. It not only minimizes our condition and our struggles, but it also tells us that you neither understand what we are going through nor do you take our illness, or us, seriously.

Please do not tell us that “everyone has problems sometimes“, “into everyone’s life a little rain must fall“, or that “nobody said life was fair“.  Likewise, please don’t tell us “it is what it is” or “everyone gets depressed sometimes“, as if our diagnosis is an everyday, trivial, meaningless bit of happenstance that is unimportant and should be paid no mind.  A mental illness is not an average, run of the mill problem, a typical bump in the road of life that everyone faces at some point and is easily cast aside or overcome. It is a medical diagnosis, a medical condition that drastically affects every aspect of our lives.  You wouldn’t tell someone with cancer that everyone has problems sometimes, laughing it off like it was nothing. You would show an appropriate level of concern over their health and well-being. You would encourage them to see a doctor and take care of themselves. You would be supportive. You wouldn’t dream of minimizing their condition because, left untreated, it could have deadly consequences. So could my mental illness and it deserves to be treated in the same regard.

Asking us if we’ve “just tried being happy“, telling us we “need to just learn to focus on the positives” or otherwise suggesting we’re not trying hard enough misplaces the blame on us for our diagnosis. The patient is never to blame when their body goes haywire and runs amuck. We understand that sometimes our bodies malfunction, become unbalanced, and horrible things like tumors occur.  You can’t will away cancer with a positive outlook and trying harder won’t make tumors disappear. The same goes for mental illnesses.  We don’t tell someone with cancer that it is “all in their head“, “mind over matter“, and expect them to become healthy again by sheer willpower alone. We encourage them to see a doctor immediately, get everything taken care of and treated so their body can work properly and be healthy again. Untreated cancer can eat a person alive from the inside out, deteriorating their health and destroying the quality of their life in every way. So can mental illness. The only difference is cancer mainly attacks and destroys the physical body while mental illnesses primarily attack the mind.

Please don’t judge us on our appearance, telling us that we “don’t look sick” or that we “just need to smile more” as if our diagnosis is even remotely dependent on our outward appearance.  Also, please don’t tell us that we “don’t look all that sad to you” or that we “looked just fine the other day” because we have briefly managed to put on a brave face or wear a mask to hide our pain.  Having a good day here and there does not negate all the bad ones.  Invisible illnesses are still illnesses.  Like many other serious health conditions inside the body, you cannot often or easily see mental illness with the naked eye.  Not seeing a tumor growing inside someone does not make it any less real or dangerous.  Not seeing a diabetic’s pancreas malfunctioning does not mean it is not happening or that they do not need treatment.  Someone with cancer or another serious medical condition occasionally smiling, laughing or briefly enjoying life does not mean that they are instantly cured and tumor-free.  Just because you cannot see our mental illness does not mean we are not suffering.

Asking us “why can’t you just be normal?” or suggesting that we “need to stop feeling sorry for ourselves” not only blames us for our diagnosis but treats us as if we’re somehow broken or flawed and it is all in our head.  Nobody asks to have a mental illness nor does anyone want to be sick.  We are not doing this to ourselves.  We are not having pity parties. Please don’t suggest we’re just looking for attention or tell us that “the only one we’re hurting is ourselves” either, as if we’re intentionally sabotaging our own happiness by entertaining the absurd idea of some make-believe malady.  Mental illness is a very real medical diagnosis, one that is often completely beyond our control.  Our behavior did not cause it any more than a person’s attitude or imagination can cause tumors.

Please do not suggest we should just “snap out of it and get over things already“, either.  A person cannot snap out of a mental illness diagnosis any more than they can snap out of diabetes.  There is no set time frame that someone should be better, or even show marked improvement.  Like diabetes, a mental health diagnosis often lasts a lifetime.  And the healing process with most illnesses is not linear.  A diabetic can alternate between periods of stability, and episodes of sugar spikes and crashes, dangerous highs and lows that drastically and dangerously impact their health.  Similarly, even when in ongoing mental health treatment, a series of good days can be interrupted by periods of downward spiraling or numbness, and worsening symptoms as we attempt to balance medications and work through both past and new traumas.  Along the same lines as the fact that we refuse to take the blame for our illness, we are also under no obligation to heal on anyone else’s schedule or whim.  It is our illness, our treatment, and we will take as long as we need to take to heal fully and properly, even if it takes a lifetime.

Do not remind us that “every cloud has a silver lining” or tell us to “look on the bright side“, suggesting that we need to look for something positive at the core of our struggle.  Likewise, please never tell us that “what doesn’t kill us makes us stronger” or tell us that “it is God’s will“, as if our suffering was some divine gift or that it will be worth it in the long run.  Again, it is an illness, a medical diagnosis.  You would not confront a diabetic who must have their feet amputated due to their condition and suggest that they would somehow come out stronger for their loss.  You would not imply to a patient who cannot keep down any food because they are undergoing chemotherapy that the silver lining is that they always did want to lose a few pounds.  You would not tell anyone that their illness was a blessing in disguise, that they should be grateful for their suffering and pain.  Comments like those would be not only wildly inappropriate but also extremely insensitive, as well.  You would offer the person suffering your compassion, sympathy and support.  People with mental illnesses deserve the same.  There is nothing positive about our diagnosis or our struggle so please don’t insist we look for a silver lining or a bright side that is not there.

Please don’t tell us that “other people have it worse“, as if our struggle is insignificant because someone else has struggled more.  Don’t ask us “what do you even have to be depressed about?“, expecting us to justify our diagnosis or quantify our suffering so you can determine its validity.  A mental illness is a bonafide medical diagnosis that deserves acknowledgement and actual medical treatment regardless of its severity in comparison to someone else’s.  It is always a serious health condition that can continue to worsen if left untreated.  You wouldn’t shrug off anyone’s cancer diagnosis as trivial or be so unsympathetic as to suggest their tumors were insignificant because someone else had larger ones.  Cancer is always taken seriously.  Mental illness should be, as well.

If we trust you enough to open up about our diagnosis, please don’t shut us down by telling us “there are just some things you just shouldn’t talk about” or reminding us that “some things should be kept private“.  That is ignorance and stigma talking.  Yes, we understand that mental illness is uncomfortable to discuss.  So is any other serious medical diagnosis.  The difference is that families and friends will discuss other illnesses and the impact they will have on everyone’s lives.  We sincerely apologize for any discomfort our diagnosis might give you, but please know that we are not confiding in you hoping you can solve it or make anything better.  We are sharing our diagnosis because we consider you an integral part of our lives and we want you to be aware of everything that is going on.  Don’t tell us that we shouldn’t talk about mental illness as if it is something we should be ashamed of having.  The biggest reason this diagnosis has become so rampant in society today is because no one talked about it for far too long.  No one talked and nobody sought treatment.  But silence won’t make the problem go away.  Health issues don’t vanish because you refuse to acknowledge them.  It will only make it worse.

Please stop shaming us for our diagnosis altogether or our efforts to seek treatment.  Don’t tell us that “all we really need is some fresh air and some running shoes” in order to feel better.  Don’t tell us that “only weak people rely on medication” or suggest we try vitamin regimens, scented oils or other homeopathic remedies instead of what we have been prescribed.  We have seen actual doctors.  Medical professionals have given us a verifiable medical diagnosis and prescribed us the appropriate medications to treat that diagnosis.  You wouldn’t shame a diabetic for using insulin to balance their body so please stop shaming us for taking our prescriptions to balance our minds.  You wouldn’t tell a cancer patient that they didn’t need chemo, to just go for a brisk run or take a nice, long bath instead.  That is because it is widely accepted that chemotherapy is used to treat cancer and insulin to treat diabetes.  If you are willing to accept other medical diagnoses and treatments as valid, please accept ours, as well.

Please don’t attack us, demanding to know “what have you even done with yourself lately?” or otherwise question why we are not able to function as well as a healthy person.  Don’t interrogate us about what we have and have not accomplished recently, either, as if our level of productivity must meet your standards or our activity must be on par with yours.  Having a mental illness takes a lot out of a person, both mentally and physically.  It is perfectly acceptable for someone who has just undergone chemotherapy to spend a day in bed if they so need it.  If a diabetic has a sugar crash and feels under the weather, others will suggest they go lay down and feel better.  Healing and recovery time is acceptable for all other illnesses.  It should be for mental illnesses, too.

For so many years, mental illness was treated as something shameful, something you just didn’t discuss, something whispered about in dark corners.  With the continuing rise of suicides, addictions and other mental health crisis in our society, mental illness is being spoken about today on a scale previously unimaginable.  I understand that it might take some time for everyone to fully understand how to openly discuss our diagnosis with both compassion and respect after being shrouded in secrecy and stigma for so long.  When unsure how to proceed, many people turn to old cliches and outdated advice that they believe have stood the test of time.  However, many of those statements and sayings are not at all appropriate or applicable to mental illnesses.  If you are unsure what to say to someone with a mental illness, a good place to start would be to ask yourself if you would say those words to someone else with any other serious illness.  If you cannot imagine saying it to someone with cancer or diabetes, for example, it’s a good bet that it is not an appropriate response to our diagnosis, either.

After all, people with mental illnesses are not asking for special treatment.  We are just asking to be treated with the same courtesy you would treat anyone else who is ill.

I Have Depression.. But I am Happy..

I have struggled with depression my entire life, in part due to a genetic mutation passed down to me from my parents that affects the way my body metabolizes specific chemicals my brain needs to moderate my moods.  I regularly go through horrendous downward spirals where I feel completely broken and worthless, where life feels utterly hopeless.  I struggle with long periods of numbness where I have difficulty functioning or even finding the motivation to get out of bed.  On bad days, I will cry until my face is sore and my voice is hoarse, and it is unlikely I will be able to accomplish much more than basic self-care.  I am battling an illness that warps my very perceptions of life and continuously exhausts and pains me both physically and mentally.

But I am happy.

I have an amazing fiance who is very supportive of me and my diagnosis.  I have healthy, kind, smart and all-around wonderful children who have grown into incredible adults.  My fiance’s children are both amazing, as well. Together we have all formed a beautiful, blended family that I love with all my heart and am proud to call my own.  I have a team of doctors who actually listen to me and a treatment plan that is slowly but surely helping improve my quality of life.  And I have a blossoming writing career that has given me a true sense of purpose and an ability to help others in need.  I have many wonderful blessings in my life to be grateful for, many reasons to be happy.

Yet I have been diagnosed with depression.

That is because a mental illness like depression has nothing to do with happiness.  Depression is not caused by being in the wrong frame of mind or just not trying hard enough to be happy.  Having a depression diagnosis has nothing to do with feeling sad, a little blue or under the weather.  People with depression aren’t being Negative Nancys or Debbie Downers who just need to learn to lighten up and look on the bright side.  My diagnosis wouldn’t just disappear if I just tried to smile a little harder or maintained a more positive outlook on life.  My depression has nothing to do with whether or not I am happy.

I have trained myself to find reasons to smile everyday.  I am usually the first to look for something positive in even the roughest of situations.  No matter how hard my own day might feel, I always try to show compassion and kindness to others.  If nothing else, I am grateful each day I wake up and thankful of all the loving and supportive people in my life and share that sentiment regularly.  I am hopeful for the possibilities the future may have in store for me, as well.  Some of my friends lovingly joke that I am the happiest, most positive little depressed person they know.

Yet I continue to struggle with my depression diagnosis.

My brain does not care whether or not I am happy or grateful, whether I am hopeful, compassionate or kind.  My mental illness is caused by my brain not working properly, much like a diabetic’s pancreas malfunctioning causes their condition.  I have no more control over having a mental illness than someone else having diabetes, heart disease or another medical condition they may have been passed genetically.  Yes, events in my life may have further exasperated my mental illness, much like having excessive sugar might worsen a person’s diabetes or having foods high in cholesterol might affect the severity of heart disease, but my condition preceded any of the traumas and abuses I have endured over the years.  I have even sought treatment to help resolve those issues to the best of my ability, yet my depression has remained.

Because depression is an illness, a medical diagnosis with both mental and physical causations.

It is not all in my head.

It is not a state of mind or an emotion.

Depression isn’t about being sad.

The cure for depression is not happiness.

Like any other illness, depression needs ongoing medical treatment.  Doctors need to not only diagnose the condition, but also to isolate and treat both the mental and physical reasons for the illness, as well. Though doctors often utilize psychological treatments like therapy, meditation and mindfulness, they usually also include psychiatric methods and medications to help treat the physical causation.  That is because doctors recognize mental illnesses such as depression as a verifiable disability that deserves a comprehensive, multi-pronged treatment.

In cases like mine where my depression has a genetic causation, my diagnosis is permanent.  I was born with it much like some children are born diabetic.  You would not blame a child for being born with a pancreas that was incapable of functioning properly so please don’t blame me for the fact that I was born with organs that malfunctioned, as well.  The only difference in my case are the organs affected.  No matter how happy I am or how positive my outlook is on life, my liver will never be able to metabolize the substances my brain needs in order to function properly.  I will have this medical diagnosis and need ongoing treatment until the day I die.

If I confide in you that I am struggling with depression, please don’t try to encourage me to try to be happier and more positive, or point out all the blessings I have in my life.  I am happy and grateful already.  You do not need to remind me to be hopeful for the future because I already am.  Please don’t blame me for my diagnosis either, insinuating that I wouldn’t be ill if I just tried a little harder.  I did not ask for this diagnosis, nor did I cause it.  What I need from you is the same compassion, understanding and support you would give anyone else with any other medical diagnosis.

Because, though I am already happy, knowing you were doing your best to be supportive and treat me with the same respect you would someone struggling with other illnesses would make me even happier.

Republished on the Mighty on 4/4/19.

When You’re Struggling With Mental Illness, A Good Therapist Can Make All The Difference

For years, I struggled with my mental health treatment.  Not only was I considered “treatment resistant” because no medication my doctors prescribed seemed to even touch my illness, but I had become increasingly disillusioned with the therapy aspect, as well.

In theory, I have always believed therapy was a good thing.  Better out than in, as Shrek says.  I believed that people need to be able to talk about the issues in their life so that they did not build up, escalate and cause further issues down the line.

However, my personal experiences with therapy and counseling were disheartening to say the least.

When I was a child, my mother briefly took our family for therapy together.  On the very first appointment, when my brother and I both attempted to speak up and share our perspectives on the situation, we were cut off.  Our “family therapist” informed us that they were the parents, we were the children, that whatever they said goes and that our opinions on the matter were irrelevant.  From that point on in his sessions, I didn’t even bother participating because he made me feel irrelevant, as well.  The whole experience left a horrible taste in my mouth and made it harder for me to trust or open up to therapists from that point on.

As a teenager after my mother shot my father, I was briefly placed in counseling again.  The therapist that time did not seem interested in who I was or how I was feeling.  They simply wanted to know whether I had any plans to try and harm myself or anyone else.  Once they felt reassured that I was not a danger to myself or others, they saw no reason to see me any further.  Again, I was left feeling like I did not matter.

In my twenties, I had my first serious breakdown and my first true glimpse into the mental healthcare system.  I now not only was assigned a therapist but a meds doctor, as well.  I also had doctors that I saw for group therapy sessions.  I had a bonafide mental health team.

My therapist was always watching the clock and would interrupt me each session when we had ten minutes left, telling me to “wrap it up” because our session was almost over.  She chose the direction of our sessions, insisting we always talk about current issues because she didn’t believe I was ready to talk about my past.  I had no control over my own therapy.  I felt irrelevant to the whole process, like I was just going through the motions of getting help and she was only listening because she was being paid to do so.  If I ever needed to contact her in between sessions, I was directed to leave a voice mail, though her mailbox was often too full to leave one.

My meds doctor was equally as bad at listening.  He would prescribe me whatever the current flavor of the month antidepressant might be.  When I would explain that it was not even touching my symptoms, he would continuously up the dosages or add other prescriptions into the mix until the side effects became unbearable and I felt like a walking zombie.  Every time I spoke up explaining that nothing was helping and that I felt worse than before I began taking anything, I was disregarded and told that I had to give the medications time to work.

My “therapy groups” were laughable at best.  Everyone in the groups were told that we were not allowed to talk about anything too personal, nor were we allowed to discuss any topic that might be triggering to anyone else.  What we were left with was a room full of people sitting there uncomfortably, some wanting to cry, others wanting to rage, as we all muttered through gritted teeth that we were fine because none of us felt we were allowed to say anything more.

The mental health clinic I attended also had an impatient wing at an area hospital.  I was admitted there a handful of times over the years.  As bad as their other services were, those stints on the mental health floor of the hospital were the worst.  It always took over a day to get my medications approved so I felt even more unbalanced from the start.  On an average three to seven day stay, I only saw a doctor for ten to fifteen minutes on the day I was admitted and again on the day I was released.  In between, the only option for any sort of therapy were groups.  I was assigned groups with the same rules as my outpatient groups so nothing was ever talked about or resolved.  No one was allowed in their rooms during the day so you had hallways full of clinically depressed people walking endless laps around a secured wing, biding their time until their next mandatory group or meal.  Patients openly sobbed or sat around with numb expressions as if life itself no longer made sense.  Nurses sat in a large locked cubicle in the center of the wing, laughing and talking among themselves and largely disregarding the patients unless they had to intervene with a “behavioral issue” or direct someone somewhere.  There was no real treatment.  It was a corral to hold the mentally ill until the staff could pass them off to be someone else’s problem.

More than once, I stopped going to my treatment over the years.  I felt irrelevant, unheard, unhelped.  It all felt like a complete waste of time.  However, with or without treatment, my mental illness raged on and periodically I found myself having another breakdown and needing treatment again. Unfortunately, there was not a large selection of mental health clinics in the county where I lived, and the others all had long waiting lists, so whenever I needed mental health treatment I was sent back to the same clinic that had already previously let me down.  Over time, I became so disenchanted with the mental healthcare system that I just couldn’t see the point anymore.  I may have had a bonafide mental health treatment team but I walked away without any real treatment for my illness.

A couple years ago, I had yet another severe breakdown, this time thankfully in another county.  With the help of a coordinated care provider, I was able to get an appointment at a clinic that normally had a long waiting list and was not currently taking new patients.  Again, I would be assigned a mental health team.  I wasn’t going to hold my breath, though.  I had been through this process many times before.  My expectations were low.

I have never before been so pleasantly surprised or so grateful to be proven wrong.  The difference was like night and day.

My meds doctor actually listened to my previous experience with different prescriptions and did not try to push a large pile of pills on me.  Instead, he had me take a genetic test to determine what medications would work best for me based on my genetic make up.  Lo and behold, based on the results of this test, over half of the medications previous doctors had placed me on were listed as causing moderate to significant interactions for me.  The genetic test also revealed a genetic mutation I had that greatly contributed to my treatment resistance.  We worked together to create a treatment plan that actually suited me.

All my groups encouraged open dialogue, even if the topic was grief or pain.  My groups laughed together and cried together.  We fought our battles side by side and all felt heard.  This clinic offered a wide variety of groups beyond traditional therapy groups, as well, such as transforming anxiety through art, meditation, tai chi and yoga.  I found myself signing up for every group I could fit into my schedule.  Not only were they treating my mental illness, they were contributing to my mental wellness, as well.

My biggest blessing and godsend at this new clinic was my therapist. She lets me control the flow of our appointments and choose what I feel I need to address each week, never prodding or rejecting the topics I select.  She made allowances with her scheduling so that if we ever went over the session time, she never had to cut me off or make another patient wait.  She understood my struggles with verbalizing sometimes in between appointments and readily agreed to communicate via email or texts because that was what worked best with me.  Whenever I have emailed or texted her, she has responded back in under a day.  Most importantly, she truly listened and cared.

When I was struggling to find housing, she brought in resources and connected me to organizations that might be able to assist me.  She helped me navigate through registering my sugar gliders as emotional support animals.  She took the time to introduce me to others I would be attending groups with so I did not feel so awkward about not knowing anyone there.  When I was on bedrest following surgery, she did sessions over the phone so that I did not have a lapse in treatment.  She has helped and intervened with more than one personal crisis time and again. She regularly went above and beyond in every way imaginable.

Perhaps the grandest gesture she had done was only a couple months into our visits.  My mother had passed away on Thanksgiving day 2010.  In one of our early sessions, I had expressed to her how hard this day still was for me years later.  On Thanksgiving, she took time out of her day and her own family celebrations not once but twice to reach out and call to make sure I was okay.

Again and again, she has shown me that I wasn’t just a patient that mattered during those 50 minutes penciled in on her schedule.  She helped me to feel like I mattered even when I had trouble mattering to myself.  She always made me feel like my mental health was a priority, that I was a priority.  I have never felt more heard.

I honestly feel like I won the therapist lottery.  In under two years time, I have gone from hating therapy and thinking it is a joke to believing it can truly make a difference in someone’s life.  My life.  Everyone’s life.  Whenever I hear anyone talk about needing a therapist, I refer them to my clinic, insisting that even if there is not an opening right away, they are worth the wait.  I often share stories about my experiences with my therapist that end in “what therapist does that?!”.  The only difference is that now my stories come from a place of gratitude instead of disbelief and disgust.

There are wonderful therapists out there.  There are clinics that genuinely want to help their patients heal, who see them as people that are suffering instead of a steady flow of dollar signs in and out the door.  I understand how easy it is to become disillusioned with the mental healthcare system when it feels like you are unheard and irrelevant to your own treatment.  I’ve been there.  I went through a revolving door of sub par and inadequate treatment for years.  But please know that not all clinics and not all doctors are like that.  Some genuinely care about their patients and their well-being.

If you are feeling unheard or untreated, please don’t give up hope.  Don’t stop your treatment because your doctor is not hearing you or is not working in your best interest.  Keep looking.  Find a new doctor.  Your mental health matters.  Don’t settle for clinics that make you feel irrelevant.  Find a place where you feel heard, where you feel like you truly matter.  Find a place that makes you look forward to getting the treatment you need.  Trust me – It can make a world of a difference in your life.

I want to end this piece by taking a moment and thank Mary B. and everyone else at my mental health clinic for making such a dramatic impact on my life.  You are all truly a blessing not only to me but to all those whose lives you have touched.  Thank you sincerely.

Changing My Perspective On My Mental Illness Saved My Life

I have struggled my entire life with mental illness.  Unlike some people whose mental illness has an origin that can be pinpointed to a specific life event, mine is caused in part by a genetic mutation.  It has always been there to varying degrees.  I have always struggled.

Thanks to that same genetic mutation, I have always been considered treatment-resistant, as well.  No medication I ever took seemed to even touch the darkness I carried inside me.  This mutation affected the way the neurotransmitters in my brain worked so I never received the chemicals that I desperately needed, whether made naturally or prescribed,  in any useful amount.

For over forty years of my life, I struggled to function while feeling inherently broken and flawed without ever understanding why.  Discovering the existence of my genetic mutation helped me see my mental illness in a new light and put me on a new path of self-love and acceptance.  There were ways to treat my mutation.  I no longer had to be classified as “treatment resistant” and pushed aside as a hopeless case.  I no longer had to stagnate through life, a broken shell going through the motions while barely existing.

Please know that I am not touting any magical cure for mental illness.  I am also not trying to push that stigma-fueled misconception that if you just try harder, you can somehow vanquish your mental illness by force of will alone.  My mental illness is still very much present and ongoing treatment is still needed.  But the way I have come to view my mental illness has drastically changed and, in many ways, it has been both a world-changer and life-saver for me.

I no longer blame myself for my mental illness.  I used to believe I was damaged and broken, that I was crazy on some core level, unbalanced and just not right in the head.  I had downed gallons of that stigma kool-aid, poisoning myself with the idea that I must just not be trying hard enough, that I was somehow doing this to myself.

I now accept that it is a verifiable illness and one that is largely treatable.  I have accepted that I am no more responsible for my illness than a cancer patient would be for their condition.  It is a medical diagnosis that affects people of all walks of life regardless of their race, religion, gender identity, age or socio-economic status.  I did not ask for my illness nor was it thrust upon me as some punishment or retribution.  People just sometimes get sick and when they do, they need treatment.

For years, I was suicidal on and off.  Because none of my treatment ever seemed to work, my world felt hopeless.  Because I felt damaged and useless, I surrounded myself with people who treated me like I was as worthless as I felt.  Even on my best days, I was only a few steps away from giving up.

Being able to finally accept that I was not responsible for my illness removed all the blame from the equation.  Since I was no longer to blame, I could stop hating myself, stop punishing myself for being so broken.  If it was a medical condition, it was treatable.  And if it was treatable, there was hope.

Hope was a new concept for me.

I was not used to the idea of looking forward to the future.  Previously, I went through the motions of merely existing day by day.  I did not look forward to what tomorrow might bring because it had always brought the same despair as told held and all the days before.  Nothing had ever changed.  But now, there was finally a very real possibility for change.  For the first time, I found myself looking forward to the future.

I also received some semblance of control over my own life.  For years, it felt like my world had been spinning out of control and I had no say in the matter, that I was just along for the ride.  But if there is treatment available that can work, that means I have control over my life again.  Though it might take time to find a balance that works for me, my life and my health are in my hands.  The only way my life will never get better is if I choose to not get treatment.

Regaining control over my own life in turn made me more proactive about my treatment.  I was willing to try anything that might help.  Meditation. Yoga. Tai Chi. Writing.  Art.  Anything that might make a difference and give me a better fighting chance.  It all added new tools to my mental wellness toolbox and made me stronger.

It also made me more open to letting others back into my life.  For years I had isolated myself from many people, believing they were better off without me.  I worried that somehow the mess in my head might spill over into their lives and firmly believed that nobody deserved that.  Being able to see my mental illness as a treatable condition allowed me to take those walls down and let people back in.  I wasn’t dangerous, unbalanced or crazy.  Nobody needed to be protected or shielded from me.  I had a fairly common condition that was treatable.

My new strength also helped me to see that everything my mental illness had been telling me all along was a lie.  I was not weak.  I was not broken beyond repair.  I was not useless, unlovable, unwanted, unworthy.  I was strong.  I was fierce.  I was brave.  I was a fighter, a survivor, a force to be reckoned with.  My future was in my hands.

My new fighting spirit gave birth to an inner advocate that I never knew was within me.  Not only was I fighting for my own mental health, but I began writing advocating for others, as well.  And the more I talked about my own mental illness, the more I let others know they were not alone and encouraged them to never give up, the stronger I got.  Within my illness, I found a purpose, a reason to keep going and to fight that was much larger than my own survival.  The same illness that for years had me pinned on death’s door had breathed new life into me and given me a true calling.

That does not mean that my mental illness is gone.  It is still there raging strong.  The only difference is that now when that inner dialogue begins, I can fight back.  I can call it out for the liar it is.  I can use the tools I have acquired in my mental wellness toolbox and stave off the worst of it.  Instead of succumbing to its cruelty like a lamb being led to slaughter, I now have the will to fight back, to call it out and to refuse to let it beat me.

And I have hope.

I want to get treatment.  Because I have a sincere hope that one day things could be better, that one day my mental illness will not have such a death grip on me.

Having hope has made all the difference.

If you are struggling right now with mental illness, please take my words to heart.  You are not to blame.  You have done nothing wrong.  You are not broken, flawed, or damaged beyond repair. You are not useless, unwanted, unloved, unworthy.  You have a medical condition that could happen to anybody.  There is treatment available.  Things can get better.

And there is hope.

You just have to open yourself up to that possibility.

Trust me.  It will change your world and might just save your life.

You’re stronger than you realize.  You’d have to be strong to fight the monsters you’ve been fighting all along.

You’ve got this.

I have hope for you.  Now all you need is hope for yourself.

Having A Positive Mindset Will Not Cure Depression

Many people assume that those who are suffering from depression are just caught in the wrong mindset, that we’re being Debbie Downers and Negative Nancys, wandering through life with a Trelawney*-sized penchant for doom and gloom.  They assume a great deal, if not all, of our mental illness could be solved simply by trying a little harder and adopting a more positive mindset.  I can tell you firsthand that is not the case.

I have been told by multiple people over the years that I am the most positive, cheerful, upbeat little depressed person that they have ever met.  I refuse to be a victim.  I am a fighter.  A Survivor.  Even in the roughest of circumstances, I still search for something positive to cling to like a life preserver in rough waters after being thrown overboard during a raging storm.  I am a firm believer that there is always something positive to be found if you look hard enough.  Even on the worst days, I am that one person you can count on to offer an encouraging smile and to point out something good to be grateful for in life.

I do not intentionally surround myself with negativity.  Over the years, I have systematically removed many so-called friends and family from my life who found more pleasure in knocking others down rather than helping each other up.  I’ve chosen instead to surround myself with people who believe in kindness and compassion, those who prefer to cheer openly for the success of others rather than privately snickering over their defeat.

I don’t carry within myself an undue amount of anger, hurt or resentment.  If someone has grievously injured me, I have learned to just remove them from my life as a doctor might amputate a gangrenous limb.  I do not allow their cruelty to continue to fester and grow but rather I accept that they do not deserve a place in my life and I continue onward without them.  I have accepted that not everyone belongs in my life and that some people were merely meant to play the passing role of a teacher of harsh realities.  I refuse to waste undue amounts of energy dwelling on the cruelty of anyone who would not give me a second thought.  I choose to focus the majority of my energy on improving myself and my future rather than dwelling on other people or a past I cannot change.

I have trained myself to consciously focus on happiness and positivity every single day.  Every day I strive to accomplish three goals.

1. Every day, no matter how rough the day might feel, I look for at least one reason to smile, one thing to be grateful for in my life.
2. Every day, I try to reach out and do something kind for someone else without expecting anything in return.  This could be as simple as holding open a door or reaching out to someone else to see how they are doing.
3. Every day, I make sure to tell at least one person in my life that I love and appreciate them.

At my core, I have a very positive mindset.  I have a fundamental belief in the strength and resilience of the human spirit, that we as a species are stronger than we realize and are survivors at heart.  I carry within myself a genuine hope that one day things will get better and I am proactive in working towards that goal.  I encourage not only myself to power through and not give up on a daily basis, but I reach out to others, as well, through my writing.

I also have friends and family that I have opened up to about my illness.  I do my best to be honest with where I am at mentally and emotionally at all times.  I have constructed a support network of people I can reach out to if I need help so I am not facing everything alone.

I have not given up on myself.  I not only see my doctors regularly, but I push myself as much as possible to attend wellness activities such as yoga, tai chi, meditation and art classes.  I take my treatment seriously.  My wellness and emotional toolbox is chock full of useful techniques to use when I am struggling.

I make sure to eat regularly even if I am not feeling particularly hungry so that my body receives the nutrients it needs.  I do not smoke or use drugs and very, very rarely do I drink any alcohol, let alone have more than one drink.  I practice self-care and engage in hobbies such as writing, sketching and painting so I have positive outlets to focus my attention upon so I do not lose myself along the way.  Over the years, I have learned to love myself and to treat myself gently, with the same kindness and compassion I would show others.

I have not surrendered to my mental illness or turned a blind eye to it, pretending it is not there.  I read up on the latest studies on a regular basis.  I belong to multiple online support groups that share not only encouragement but share information, as well.  I want to remain knowledgeable about my illness so I can make educated decisions about my ongoing and future treatment.

My mindset is not an issue.

I am fighting every single day.  I am like the cancer patient who pushes herself to eat even though her chemotherapy has left her feeling nauseous because she knows it is what her body needs or to go for a short jog because she is determined to not let her illness defeat her.  I am like the woman with rheumatoid arthritis so bad that every step wracks her body with pain who still goes out to work in her garden because she doesn’t want to lose herself to her illness.  I am no different than many other people with hundreds of different debilitating diseases, illnesses and ailments who are fighting the good fight every single day not only to survive but to find some way to truly live despite their diagnosis.

Again, my mindset is not the issue.

All the positivity in the world will not negate my illness.  A wellness toolbox full of handy tricks will not fix it.  It is a medical condition that needs medical treatment.  As good as things like having a support system, a positive attitude, eating well, exercise and engaging in healthy hobbies might be for someone’s emotional well-being, they will not cure mental illness any more than they would cure cancer or arthritis.  I have learned to cope with my illness to the best of my ability but I still need ongoing treatment.

The main difference between other more widely accepted ailments and mental illness is that my condition stems not in my body but in my brain. That, and the stigma attached to mental illness that prevents others from viewing it as a legitimate, treatment-worthy condition.  Because it cannot readily be seen by the naked eye, it is often doubted, minimized and trivialized, treated largely as a joke.  Though it may be considered an invisible illness, I am fighting it every single day.

From the time I wake up every day, I am fighting my own mind.  As much as I struggle to stay positive and focused, a very real part of me is trying to convince me that the world is hopeless.  Whenever I attempt to reach out to friends and loved ones, it tells me that I am a burden to them, that I shouldn’t bother, that I should leave them in peace.  It pushes for me to isolate, to hide my pain, to succumb and surrender to it.

There are days I am overwhelmed with emotions.  I feel everything so deeply and there appears to be no way to turn it off.  I have this intense need to cry, to weep not only for myself but for everyone else struggling, for everyone who’s lives have been made harder by my illness and for everyone else who has lost their battles along the way.  On those days, my world is overflowing with so much pain that it is overwhelming.

On other days, I feel nothing at all.  I find myself trapped in a dark void where nothing feels like it matters, least of all me.  There is no joy in that darkness, no light, no hope.  I struggle to even move because I feel swallowed up within its depths.  Everything on those days feels like an insurmountable obstacle.  Even simple tasks like eating make no sense because everything tastes bland, like nothingness.  That voice within my head echos through the darkness, asking what’s the point.

No mater how much the sun is shining, my world always feels dark, cold, hopeless and full of despair.  No matter how many times I tell myself that it isn’t truly the case, it still feels that way.  It is like my mind has constructed its own alternate reality and has taken me hostage within its walls.  I feel helpless like I have no control over my own life, let alone my body or my mind.

Every single day, I have to fight myself to even get out of bed.  It isn’t a case of laziness or just not wanting to get up.  The weight of everything I want to do and need to do rests so heavily on my shoulders that I often find myself immobile, incapable of action.  Every single day I am beating myself up for everything I know I should be doing but cannot manage to bring myself to do.  I desperately want to get up, do things and be productive, but the weight of my illness pins me down.  It then uses my inability to function against me as evidence that I am worthless and a waste of space.

Every single day, my mental illness presents itself in very real and physical ways as well.  My body is always as exhausted as my mind.  I ache all over.  My anxiety frequently has my head spinning and my heart pounding.  When confronted with stress, my chest tightens and my thoughts race.  My stomach is always in knots.  I regularly experience nausea and vomiting and have a recurring bleeding ulcer.  I have absolutely no desire to eat most days or to even do anything at all for that matter.  Every night, I struggle to get to sleep and to stay asleep.  I am plagued by horrible nightmares on a regular basis.  No matter how much rest I might get, I always feel sluggish, like I am running on empty.  It is like my own body has betrayed me.

My world feels hopeless.  I feel helpless.  I feel lost and alone.  I feel broken beyond repair.  There is not a single day that I do not have to remind myself multiple times that this is not reality.  This is my mental illness.  There is not a single day that I am not fighting with myself, pushing myself to do something, anything, even if it is just to pull myself out of bed and eat something.

I am not consumed by negativity, nor am I lazy or weak.  I have not given up on myself or the world.  I have hope for my future and a strong will to fight.  I am doing my best.  I refuse to let my mental illness beat me.

My mindset is not the issue.

My mental illness is.

I struggle every single day not because I am not trying hard enough to have a positive mindset but because I am ill.

 

*For those unacquainted with Sybill Trelawney, she is one of many wondrous creations from J. K. Rowling’s Harry Potter universe, the Divination professor who at one time or another had foreseen the death of every student at Hogwart’s.  Whenever I imagine anyone embracing hopelessness and envisioning a world full of nothing but doom and gloom, I think of Trelawney.

 

To the Mother I Never Knew..

As Mother’s Day came and went this past year, I once again found myself with conflicting feelings.  Part of me wanted desperately to join in with friends who were fondly honoring their moms or mourning the mothers they had lost over the years.  Another part of me, however, felt numb and empty, because I never had that type of cherished bond with my mother.  I honestly never knew her.

No, my mother didn’t die when I was born.  She passed away 8 years ago this Thanksgiving Day.  No, she didn’t give me up for adoption nor did she abandon me.  The truth is that my mother was there throughout the majority of my childhood and sporadically at best throughout my adult years.  I just never really knew her because the woman she truly was was buried deep beneath often untreated, always undertreated, mental illness.

Growing up, my mother was one of my biggest abusers, both mentally and physically.  She was prone to severe mood swings that would shift into bouts of rage at the drop of a dime.  She had bipolar disorder.

We were estranged for the last few years of her life.  I could no longer handle the abuse nor did I want my children subjected to it.  It seemed that her medication was never quite balanced nor were her moods.  It always felt like what little treatment she did receive was not helping, was not working, and she was doing very little to proactively work towards correcting anything.  She felt to me like a ticking time bomb, one I was afraid would go off at any moment and I did not want my children caught in the crossfire.

Over the years as I have struggled with my own mental illnesses, I have come to deeply regret those feelings.  I was diagnosed with depression, anxiety disorder and PTSD, labelled treatment resistant for years.  No medication ever seemed to work.  It wasn’t until the last year or two that I discovered via genetic testing that my resistance was caused in great part to a genetic mutation.  I’ve often wondered since then if my mother suffered from the same mutation.

The truth is that mental illness changes a person, or perhaps more appropriately it snuffs that person out, dimming their light and dulling their soul.  The person that you are is trapped underneath, desperately needing to come out, wanting to shine.  But there is this dark hopelessness that oozes over everything, making it impossible to fully be the person you truly are.

I think about my own children and how my diagnosis has affected them.  They have only seen glimpses of the real me over the years.  The creative me who would spend half the day drawing huge murals with sidewalk chalk on the tennis courts at the park with them on summer days.  The silly me who would make paper pirate hats and eye patches, transforming our dining room chairs into a pirate ship to celebrate Talk Like A Pirate Day with them.  The nurturing and educational me who would catch tadpoles in buckets with them to show them how they turned into frogs.

More than anything, though, they saw my mental illness.  They saw the mom who was too exhausted just from going through the daily motions of life to do anything fun.  They saw the mom who opted for quiet family days indoors watching movies or playing board games because I was physically and mentally unable to do anything more.  They saw the mom who often emerged from the bathroom drying my eyes as I attempted to hide the tears I could never seem to stop from flowing.

They were vaguely aware of the person I truly was but they knew my mental illness well.

I remember when I first started taking the medication I needed for my genetic mutation and I had my first truly happy moment.  It was the first time in my life I ever felt that sludge of mental illness be lifted off of me, albeit for a short period of time.  The medication is not a panacea.  It in no way cures or stops my mental illness.  However, it does give my mind the ability to fight back in a way that it never could before.

That moment of happiness was beyond blissful.  I laughed, cried and hugged my boys, asking them again and again if that was truly what happiness felt like.  I had never experienced anything else like it.  That sludge continues to lift here and there sporadically and I have a genuine hope for the future now, that there might be a day when there’s more periods of happiness than illness.  But for now, more days than not, I still struggle.

I have heard from people that knew my mother at the end of her life, in those last couple years, that she had finally gotten the treatment she needed.  Her medication was finally balanced.  She was happy and more herself than she had ever been before.  She was doing crafts with the neighborhood children and even developed a fondness for Harry Potter.

Part of me envies them because I never knew that woman.  I never had the pleasure of meeting her.  All I ever knew was the sludge and taint of her illness.  On Mother’s Day, I mourned the ghost of a woman I never even met, a woman I would have loved more than anything to know.

Please keep in mind that when you’re dealing with people who are struggling with mental illness that they are not completely themselves.  The person they truly are is in there somewhere, beneath their diagnosis, fighting to get out.  Please don’t ever assume that we’re just not trying hard enough, that we’ve already given up or that we’ve lost who we are along the way.  It is a daily battle, a constant fight, against your own mind.  It is a never-ending struggle to push your way through a thick layer of darkness just to come up for air.

Looking back, I truly regret becoming estranged with my mother.  I had done what I thought was best at the time, trying to shield my children and myself from an illness that was not her fault.  She had no more control over her bipolar disorder than I do over my own mental illness.  I am sure she was trying harder, fighting more, than I ever realized.

To the mother I never knew – I’m sorry I was not there when you needed me.  I’m sorry that I allowed my fear to dictate my actions and choices and that I abandoned you when you needed me most.  I’m sorry I was not more compassionate and understanding of all that you were going through.  Most importantly, I am sorry I never had the pleasure to truly meet you.  Happy belated Mother’s Day.

Republished on The Mighty on 9/14/18.

Republished on MSN on 9/14/18.

Republished on Yahoo on 9/14/18.

Republished on Yahoo Lifestyle on 9/14/18.

Anxiety is Often Completely Irrational

Anxiety is often irrational but the fact that it does not always readily make sense does not stop it from rearing its ugly head.

Sometimes all it takes is something going badly once.  Every single time I’m in a similar situation afterwards, my anxiety is heightened and part of me fears that something bad will inevitably occur again.  Other times, I can have something bad occur repeatedly and nothing is ever triggered.  Each new time something bad happens again, I find myself honestly surprised at the outcome.

There’s no rhyme or reason to which will occur.  It is not based on the severity of the bad result.  It is not based on how pivotal the event was to my life.  Though I have struggled for years to understand my anxiety and pinpoint what causes it, I have not been able to discern any common factors to make it easier to predict my anxiety in the future.

A recent example of how my anxiety presents itself occurred a couple weeks ago. While preparing to shave my legs in the shower, I found a tick on my leg just below my kneecap.  Thankfully, he didn’t appear to have been there for long. I was able to get him out fairly quickly and easily.  There have been no rashes or bullseye rings around the site since then to warn of conditions such as Lyme disease.  All in all, I was pretty lucky. The whole situation was resolved quickly and without further or lasting complications.

This was my first experience finding a tick on myself in my lifetime.  It obviously was an isolated occurrence, unlikely to be repeated again any time soon.  I don’t spend a lot of time in wooded areas or anything where I’d be likely to pick up another tick.  Yet every time I have stepped in the shower since then, my anxiety easily goes up two points.

Whenever I step into the shower now my heart starts to race.  Though I begin an inner monologue telling myself that I am just being silly and paranoid, I can feel my chest start to tighten.  I stand under the stream of water, close my eyes and practice my conscious breathing techniques trying to calm myself back down.  I struggle to fight the urge to scour every inch of my skin again and again looking for other ticks.

I know it is irrational.  I know my anxiety in this situation makes no sense.  I know that, logically, I am highly unlikely to find another tick even upon a thorough inspection.  I know it was an isolated incident.  But logic plays no part in how my mind and my body begin to react in these situations.

I don’t even know if my anxiety in this particular situation will fade somewhat over time or if it will continue to grow.  Sometimes my situational anxiety will dull somewhat over the course of time.  Other times, however, it remains consistent or even grows and expands upon itself, merging with other anxieties over time.  Again, I have never been able to find any rhyme, reason or pattern to how my anxiety presents itself.  There’s no way to predict what lies ahead.

All I know is that, thanks to one random, errant tick, I have become increasingly apprehensive about taking my showers over the last couple weeks.  And I know that as much as I try to be rational and reason with myself, I cannot rationalize with my anxiety.  It comes and goes as it pleases, always leaving a mess in its wake.

That has always been one of my biggest issues with explaining my anxiety to other people.  Everyone always attempts to apply logic to the situation to “help me see how ridiculous my anxiety is”.  You cannot rationalize the irrational.

Though sometimes portions of my anxiety will eventually fade over time, I have carried others with me for decades.  A good portion of my anxiety revolves around never truly feeling safe.  In this aspect, it has merged with my PTSD because in my head security equates to safety.  Due in a large part to the abuses of my past, I have noticed that I subconsciously react to my anxiety over not feeling safe in many ways. For example, I always leave my shower curtain somewhat ajar so I can see the pathway directly to the door.  I often find myself jumpy and apprehensive when seated with my back to doorways because I carry within myself an ever-present fear of someone approaching me unaware.  I check locks repeatedly, especially before going to bed, because I cannot  relax, get comfortable or fall asleep if I am even the slightest bit anxious about my safety.

I have not experienced anything in the scope of sexual abuse or physical abuse since I was a child that would warrant such anxiety.  There is no rational explanation for why I need to have a clear view of the door from my shower or why I must watch the pathways to my location like a hawk.  It has been decades since I have had anything happen and I am no longer that little child who cannot fend for herself.  But my body and mind will not accept that reality as fact.  To this day, whenever I am presented with certain situations, my anxiety is automatically heightened.  It doesn’t matter that it is irrational.  It doesn’t matter that I can even clearly see that the situation is irrational and call myself on it.  My mind and body still react as if there is something to fear.

I understand that others mean well when they try to reassure me that there really is nothing to worry about or make comments about my overreacting.  I’m aware of that fact myself.  But they might as well be telling me the sky is blue because I can see that, as well, yet I have as little control over that as I do over my anxiety.  There is nothing anyone else could say to me that I have not said to myself a hundred times over.  I know somewhere within myself that it is irrational.  But that does not stop my mind and my body from reacting as if it was the most rational thing in the world.

I don’t need anyone else to tell me that my anxiety is often irrational.  Trust me, I have those bases well covered.  What I need more than anything is compassion and understanding, along with acknowledgement that I am doing my best to use everything I possess in my mental wellness toolbox to soothe myself and bring myself back down out of a panic.  I know my anxiety is often irrational.  Please believe my when I say I am not doing it intentionally to make my own life or anyone else’s harder.  It is a mental illness.  I have virtually no control over how my mind and body react in certain situations.  The last thing I need is judgment or lectures about how I just need to be more rational and calm down.  Because let’s face it – You cannot reason with something that is unreasonable.  You cannot rationalize the irrational.  All the common sense in the world will not negate anxiety.  It is a medical condition.