More than Just a Faceless Number in the Pandemic

There’s nothing quite like those moments of enlightenment when you realize that your feelings and motives go deeper and are more personal than you previously realized or openly admitted.  Why do I care so deeply about people being responsible and staying home as much as possible during this pandemic?

Whenever I was asked, my first impulse answer was always that I didn’t want anything to happen to those I care about and their loved ones, that there are people in my life that are older or are immuno-compromised, friends who are considered high risk because they just got over cancer or who have just had a baby. I care a lot, perhaps too much at times, about other people, mostly because I know what it is like to struggle and suffer and I don’t want anyone else to needlessly go through any heartache or pain.

I spend a lot of time thinking about how much everything affects others that I often forget to consider my own personal situation. Perhaps I also struggle to consider myself among those who need extra protection, those who are determined to be at a higher risk, those in the biggest danger. I have come to see myself as a fighter, a survivor, and being lumped into that category is like accepting that I am fragile, weak, that I am less than the strong person I believe myself to be.

I have been through a lot in my life.  As a child, I endured every type of abuse imaginable.  Physical, mental and emotional abuse lent to my PTSD diagnosis.  Sexual abuse led to my doctors telling me I might never be able to have children.  Yet I persevered.

At sixteen, my abusive childhood culminated with my mother shooting my father.  I was bounced around among family members for a little over a year before finding myself on my own before I was even eighteen years old. Yet I survived.

Even though addiction ran in my family in the form of both drug and alcohol abuse, and trauma like mine often serves as a catalyst for substance abuse, I managed to avoid both and powered on.

I have struggled with severe depression my entire life, due in part to abuse and trauma, and partly due to a genetic mutation that deprives my brain of the substances it needs to adequately moderate my moods, yet I found ways to continue to function and continue to fight.

I have suffered much heartache over the years, from failed unhealthy and abusive relationships, to multiple miscarriages, yet refused to let any of it ultimately break me.

Cancer runs in both sides of my family.  It stole my mother’s brother way too young.  I watched as it slowly ate away at my father until there was nothing left of him and as it almost killed my mother.  Starting in my twenties, I have had numerous cancer-related health scares of my own.  I had two pre-cancerous atypical pap smears that required cryosurgery and was told afterwards that they were caught just in the nick of time.  In my thirties, they found a mass on the side of my breast extending under my arm that was deemed non-cancerous.  At forty, I had to have one of my ovaries removed because there was a large cyst on it with a fibrous mass inside.  Thankfully, the biopsy after my oophorectomy showed the mass to be benign.  And finally, a little less than two years ago, doctors found not one but two meningioma tumors on my brain.  Yet I continue on and refuse to lose hope.

I continue on because I am a survivor. That is what I do.  I keep going. I power on.  I fight whatever life throws my way.

And I do so with kindness in my heart.  I never want my own life experiences to make me jaded or cruel.  I know what it feels like to suffer and I would not wish my struggles on anyone else.  I try to always show others kindness regardless of whether it was ever shown to me in my own times of need.  I have always firmly believed that there is too much suffering in this world and it is our responsibility to be kind to one another, to watch out for each other, and to ease each other’s pain whenever possible.

And somewhere along the way, I rediscovered myself.  I found a miraculous inner strength, a renewed sense of purpose and even was blessed enough to have wonderful children and find a deep and true lasting love.  I have transformed my own pain into mental health advocacy for others.  I write and speak out to encourage others to keep going, to never give up.  I empathize with the struggles of others and let them know they are not alone.  My writing has been showcased worldwide, discussed on television, radio and internet media programs and shared by numerous government agencies, private practices, and advocacy groups along the way.  I have managed to reach and help more people than I ever imagined possible.  My children and my writing are a legacy I am proud to leave behind.

I have come a long way in life and I have overcome many obstacles along the way.  I am a fighter.  A survivor.

However, to the medical community, I am reduced to a simple list of stats.  Though in normal times, doctors often make an effort to acquaint themselves with their patients to better serve their needs, we are currently in the middle of a worldwide viral pandemic.  The number of infected is increasing daily by the thousands in my country.  And to make matters worse, I happen to live in New York – the current epicenter of the virus in the United States.  Doctors don’t have the time or the energy to get to know all of their patients well right now in an emergency setting.  They have to make split decisions based on medical history prior to infection.

And the simple fact is that I have cancer.  I have two tumors on my brain.  I’m honestly not sure it even matters that the tumors are benign or that right before the pandemic was declared a national emergency, my neurosurgeon informed us that my tumors have shown little to no noticeable growth in the last eighteen months’ of MRI scans.  The cancer diagnosis alone means that I am considered high risk and my treatment is considered a lesser priority than someone else without preexisting conditions.

The fact that I have continuously fought hard and survived many things over the course of my entire life is irrelevant.

The fact that I have dedicated years to helping and advocating for others is irrelevant.

The fact that I am otherwise relatively healthy is irrelevant.

Even the fact that I am a mother and a fiance is irrelevant because every single person that comes through the hospital doors is family to someone.  They are all a son or a daughter.  Many are parents, grandparents, spouses, friends.  We all have a story.

But my story can be reduced to one word, a word that makes my treatment less of a priority during a pandemic. Cancer.

As much as I want to say, want to believe, that the primary reason if not the only reason I want people to stay inside and be responsible is to protect others, I have to accept that I need protecting, too.  My health and well-being is important, as well.  I am part of that at risk, high risk group.  If I get sick, my treatment will possibly, if not likely, be deemed less of a priority.

I don’t want to see myself as someone needing protection because I don’t want to be seen as a victim. I don’t want anyone to feel sorry for me.  I am a fighter.  A survivor.  I have beaten the odds again and again.  I have a lot of living left to do and a lot of fight left in me.  I have children who I long to see grow into their own.  I have a wedding to plan.  I have more writing and advocacy to do.  And I have this cancer to beat.

My staying home unless absolutely necessary only goes so far to flatten the curve.  I am depending on others to be responsible, as well.  Every person out there interacting is a possible carrier and the more people congregating in a given area, the bigger and more likely the spread.  The more this virus spreads, the more likely I am to get it.  Hospitals in my state are already struggling to the point where do not resuscitate orders have been put in place if somebody dies.  If the hospitals become even more overwhelmed, they will be put in the same place Italy was at the apex of their crisis – with doctors having to choose who gets treatment and who dies based solely on their prior medical history.  And having tumors means if the hospitals are overwhelmed, I might be deemed not worth saving because they don’t have the manpower, equipment, time or energy to save everyone.

It’s easy to consider terms such as “acceptable losses” or to shrug off deaths of the elderly and sick as “the thinning of the herd” when you think in terms of abstract numbers instead of considering the actual people behind those numbers.  It is different when you consider the faces and stories of those people and the families they will be leaving behind.  Even one person needlessly contracting this virus and dying should be one person too many.  We all have families and stories.  We aren’t just faceless numbers.  And many of us still have a lot of life left to live and a greater purpose left to fulfill.

I didn’t come this far to only come this far.  I’m continuing to fight the good fight because I want to eventually leave this world a better, kinder place than it was when I entered it.

I don’t want to die.

I don’t want any of you to die either.

Republished on The Mighty on 5/4/20.

Republished on Yahoo News on 5/4/20.

 

Fear of the Unknown – Wedding Planning Anxiety

As a young girl, I dreamt of my wedding day many times over.  My friends and I had mock weddings in our backyards and on the playground, pretending our dandelions were expensive bouquets and using whatever we could find as makeshift veils.  We would practice walking down the aisle, improvising imaginary heartfelt vows that professed undying love.  It was thrilling to imagine that one day, when we found our real life prince charming, he would sweep us off our feet and we would get to plan our wedding for real.

I have never planned an actual wedding before.  I was married once before but I never did get the fairy tale wedding of my dreams.

My ex-husband and I got married more out of obligation than any deep-seated desire to be wed.  After struggling to find his way in life, he stopped in at a recruiting station on the way home from work one day and decided on the spot that he wanted to go into the Air Force.  We had a young son together at the time.  The Air Force had a steadfast rule against recruiting single parents.  Upon learning this fact, he came home from the recruiter’s office that afternoon to explain his dilemma.

It was followed by a simple “..so do you wanna get married or what?”

I was not one to stand in the way of his future or his happiness so I agreed.

Not a very heartfelt proposal followed fairly closely by an equally eloquent wedding a few days later, a simple hand-fasting in his mother’s living room, followed a store bought sheet cake.

I had a wedding gown that I had previously purchased when my ex and I had casually tossed around the idea of possibly getting married one day.  I had found it on sale, a virtual steal, already altered for another bride with a similar frame who changed her mind at the last moment.  The dress originally retailed for a few thousand but had been marked down to just over a hundred because it sat in the store, unpurchased, for so long.  It seemed like kismet to find a gown already tailored to my exact proportions.  It was beautiful and elegant, everything a young girl would imagine her wedding dress to be.  Yet it sat in the closet on my first wedding day, never even made it out of the box.  It seemed silly, bordering on asinine, to even put it on when the rest of the few people in attendance were not dressed up at all.  I have since gotten rid of that gown because it stood as a painful reminder of everything my wedding should have been but wasn’t.

This time around, I want to do it right.

By right, I don’t mean some over-the-top fancy gathering where everyone is dressed to the nines and I’m paraded around in a dress that costs nearly as much as a new car.  I honestly don’t even need another fancy wedding gown, though I do want to wear something simple yet beautiful to mark the occasion.

I don’t need an expensive bouquet.  Nor do I need a fancy big cake with multiple tiers and arches.  I’m actually partial to wildflowers.  And we both love cheesecake.  I’m open to compromises as long as I am not compromised right out of my wedding day altogether.  I refuse to ever do that again.

By right, I mean a wedding that’s planned out, on my terms, incorporating things that mean something to both Marty and me.  I want to be surrounded by our family and friends.  I want to have music we’ll both happily sing along to and food we’ll both enjoy.  I want it to be a day full of love, laughter and happy tears.  I want it to be a day that I will cherish forever, look back upon years from now and smile.  I don’t want some rushed, generic ceremony with no heart done out of obligation.  I want a real wedding.

That being said, I have no idea how or where to begin.  I have a vague idea of some concepts I would like to incorporate but I have yet to weigh which are realistic and which are not, not to mention what will be affordable.

We don’t have a lot of money to dedicate to the day, but even that is fine by me.  We will manage.  After all, a marriage is supposed to be a celebration of love, not of wealth.  But I don’t want to disregard the day as unimportant, either.  It marks an important milestone in our lives and should be treated as such.

I’m thrifty by nature and crafty at heart.  I love to save wherever I can, whether by hitting sales or doing things myself.  I even find all these bridal giveaways fun in their own “probably never going to happen but it’s nice to dream” sort of way. However, the field ahead of me is largely unexplored and I fear it may be full of landmines I am not expecting.

I fear cutting corners like George Castanza in Seinfeld, opting for cheaper envelopes with toxic glue.

I fear taking on a project that turns out to be more than I can handle, of wasting time, resources and money that would have been better spent somewhere else or done by a professional.

I fear forgetting something critical to the ceremony, or even worse, someone important.

I even fear having everyone object at the ceremony, telling him to run while he still can.

I’ve barely scratched the surface of planning this wedding.  I still have over 9 months to go and an entire wedding to plan.  Yet in my head I have failed miserably at it many times over in a thousand different ways.

I know deep down that it is just my anxiety and not reality.

My anxiety has a knack for making mountains out of mole hills, of making even the simplest of tasks feel overwhelmingly impossible.  My anxiety holds me on the verge of sheer panic, racing through my mind everything and anything that could possibly go wrong.  And that is on an average day.  Throw a once in a lifetime milestone like marrying the love of my life into the mix and my anxiety goes into permanent overdrive.  I only have one shot at this and I cannot let my anxiety get the better of me, pushing me to give up before I have even begun.

I know I am capable of doing this.  I’m more than competent at planning and organization, even meticulous when I need to be.  I am creative and artistic.  I have a good eye.  I am overly sentimental, bordering on downright sappiness, so I would never intentionally leave anything or anyone meaningful out.  Most importantly, I know Marty as well as I know myself so I know better than anyone else how to create a day that would mean the world to both of us on multiple levels.

Yet my anxiety rages on.

My plan at this point is simple.

I have to take things one step at a time, one task at a time.

Focus on what matters.

I am not striving for perfection.  I don’t need everything to be perfect.  I just need more than a rushed wedding in a living room with a generic sheet cake so my new spouse can ship off to basic training.

I need a wedding that will mean something to both Marty and to me.

I know I can do this if I set my mind to it, take my time and work it out one piece at a time.

The problem is that I honestly have no idea how to do it quite yet.  And not knowing where to even begin is probably the scariest feeling of all.

Except perhaps letting him down.

That scares me even more.

But that’s when I hear his voice, calming me, soothing me.  Telling me whatever I do will be perfect.  That he will love me no matter what.  That all he wants is for me to be happy.  That all he wants is to spend the rest of his life with me.  He has that miraculous power over me to bring me back from that edge, to lull me back to reality, to give me the peace of mind I so desperately need.

I know in my heart that no matter what happens on our wedding day, what truly matters is that it marks the first day of the rest of our lives together.  I know that no matter what happens, it will be perfect because we will be together.  Everything else is just details that I will iron out along the way.

I just wish my anxiety would stop trying to convince me otherwise.

This Piece Was Originally Written For The Anxious Bride on 8/11/18.